Taking a break from temozolomide

Status update: The MRI went well on August 11.

The plan for me is to take one more cycle of temozolmide (cycle 18!) and then take a break. The break is for a few reasons:

1. My body needs a break from chemotherapy.

2. I am tired of chemotherapy.

3. I am getting married soon and I want energy for the wedding and honeymoon!

I am fortunate to be in a position to take a break. I don't remember what a normal body feels like. I know everyone is tired after a day of work, but it is serious work to stay motivated to go on a walk. (Brett keeps me motivated.)

My next MRI will be in November. Super Awesome Nurse will be out on maternity leave by then (yeah for her!) but Erin and I have been talking about synchronizing our Kaiser visits and carpooling to Redwood City together. (Erin has glioblastoma.) This could work out very well, as even though we have the same neuro-oncologist, I tend to be seen by the nurse practitioner and she would probably be seen by Dr. P.

After November I will decide whether or not I will continue temozolomide. If the tumor looks stable, if I like the way I feel, and I feel comfortable with the idea, I can stay off of it.

Wow.