The Liz Army:
A blog

Patient. Patient advocate. Researcher. Student.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

Surviving, Advocacy Liz Salmi Surviving, Advocacy Liz Salmi

Lobbying with my emotions: brain tumor advocacy is conjuring up all kinds of dirt

I have no idea if my father is 'proud' of me, but in my mind he has no right to be proud. Because nothing of who I am reflects on him, his skills as a parent or of who he is as a person. Pride is feeling good about something you did. He never did anything, and he certainly never reached out during my entire cancer process. I never got flowers. I never got a card. He didn't come to my wedding.

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Surviving, Advocacy Liz Salmi Surviving, Advocacy Liz Salmi

Brain tumor advocacy in full swing: it's time to educate Congress

There are people who are mortgaging their homes just to get their kids the Temodar they need. Some people are skipping their treatment and using it only every other month.So you can imagine what a blessing it would be to brain cancer patients everywhere if our chemotherapy was treated the same way as chemo for every other cancer patient. For reasons unknown to me, we are being discriminated against, and this is not OK.

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