Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
I got married
We dated for more than a year before I was diagnosed with cancer, and you still take care of me every day. You keep me safe in this world, and when I am with you I have the strength to conquer anything.
No words to describe getting married during cancer treatment
It is hard to think of something to say that will fit within just a minute of time to capture the amazing amount of love I have for a man who essentially saved my life.
This is what cute looks like: engaged with brain cancer
There will be MRIs. There will be more decisions about continued treatment. There will be times I forget. There will be times when I worry.
What is family?
Upon hearing the news and finding out that I had a "mass" in my brain, my best friend called her dad. He was in town the next day--asking the important medical questions, demanding answers, advocating on my behalf (because I was too out of it to know what was going on).
Taking a break from temozolomide
I am fortunate to be in a position to take a break. I don't remember what a normal body feels like. I know everyone is tired after a day of work, but it is serious work to stay motivated to go on a walk. (Brett keeps me motivated.)
