The Liz Army:
A blog

Patient. Patient advocate. Researcher. Student.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

Liz Salmi 7/10/17 Liz Salmi 7/10/17

How I chose my new neuro-oncologist

The doctor’s job is to make sure I receive good care, not be my best friend.

Liz Salmi 1/11/12 Liz Salmi 1/11/12

Erin: founding member

But in the spirit of Erin and her outright frankness, I feel it is my duty to admit that she will be next, in a line of amazing people I've known, to lose their life to a brain tumor.

Liz Salmi 5/13/11 Liz Salmi 5/13/11

Dreaming about my friend’s brain surgery

My friend Erin is having her second brain surgery on Wednesday and last night I had this dream.

Liz Salmi 1/29/11 Liz Salmi 1/29/11

I honestly can’t remember how many months I’ve been on chemo

I am supposed to start another round of Temodar in about a week, but I can't remember how many months I’ve been on chemo.

Liz Salmi 8/20/10 Liz Salmi 8/20/10

Taking a break from temozolomide

I am fortunate to be in a position to take a break. I don't remember what a normal body feels like. I know everyone is tired after a day of work, but it is serious work to stay motivated to go on a walk. (Brett keeps me motivated.)