The Liz Army:
A blog
Patient. Patient advocate. Researcher. Student.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
A recent interaction between the neurologist and me
During these spells the world looks as though I view it in a fisheye camera lens, and I feel like things are far away. I am clumsy and confused about the location of my body parts. And even if I am looking at my hands they feel foreign.
Can you be a survivor when you are living with cancer?
If you die from cancer you shouldn't be labeled a "non-survivor".
If you had migraines you’d know it
Why do people feel the need to show off by saying their situation is worse?
The difference between a seizure aura and a partial seizure
A partial seizure would cause me to feel some sort of “ants marching up my arm” sensation, also known as a Jacksonian march. But this was more of a "world spins sideways and time slows down" sensation.
Two years of platelet counts while on chemotherapy
I am grateful my body is receptive to this drug because I know it does not work for everyone the same way.
Is anyone listening?
Sometimes I feel like I am shouting into the wind and no one is listening.
That one time I put my blood in my refrigerator so I could participate in research
I am so used to this life it does not freak me out anymore.
I might have nystagmus
The worst case scenario you could have in this situation is a brain tumor.
Four more months left of chemotherapy
What will it be like to take this drug for the last time? When it is all over?