Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

 

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

On Treatment Liz Salmi On Treatment Liz Salmi

Trying Depakote

All of this is great if the tremors go away, but I have been on the new drug for a week and I still have tremors--and they are weird. It almost feels like I've had way too much caffeine and I am shaking with excitement, but I am not excited, nor do I have extra energy.

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On Treatment Liz Salmi On Treatment Liz Salmi

Mark Miller

There's this guy I met at the UC Davis brain tumor support group, Mark Miller. He was there to make a presentation on managing health with technology – and Mark had brain cancer too.

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