I honestly can’t remember how many months I’ve been on chemo
IMAGE: FTW means “for the win!.”
I am supposed to start another round of Temodar in about a week, but I can't remember how many months I’ve been on chemo.
I mean, I can easily go into my calendar, or look at past e-mails with my neuro-oncologist, but if I were to rely on memory right now I am teetering between month 20 or 21. Maybe 22? Nah, 22 is too cool to be me right now.
I used to be religious about keeping track of how many months I had been on the drug and how many months I had left to go.
Everyone I have personally "met" (though blogs or otherwise) who has taken Temodar is done with it.
Erin took it for six months. Liz Z. took it for six months. Brett G. took it for a few months before his doctors realized it wasn't working for him. Kent just finished his final 12-month treatment. Granted, they all took higher dosages than me because their tumor grades are higher (3-4) and also had radiation, so they couldn't be on it as long. Other grade 2+'s had different treatment--David had it for six months along with radiation.
I feel fortunate to not have radiation, but I feel like I'm the only one left on Temodar—like a kid who never learned their multiplication tables and had to be held back a grade.
But that's not true. There are hundreds of us on Temodar and I just don't know who you are.
Update from 2020: Four of the five people mentioned above are now deceased, and today I hold them in my heart. Shout out to Liz Z. for moving forward with her life and still being a friend today!
