The Liz Army:
A blog
Patient. Patient advocate. Researcher. Student.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
I accidentally self-titrated to a lower dose of Keppra, and I feel good about it
I told myself I'd be super careful with the seizure meds because... who wants a seizure? But deep down I've often questioned the reasoning behind what I was prescribed.
Parietal lobe damage: One side feels different from the other
I hate that with every odd thing that happens I immediately trace it back to being an issue with my brain tumor.
Legit controlling my body with my thoughts
When I control my body with thoughts I am at my most powerful. I wouldn't have realized this if it wasn't for brain cancer.
That feeling when your radiologist and oncologist disagree…
He seemed freaked out. I could tell by the look in his face. He felt compelled to hug me and let me know that "a lot of people are thinking about you, and care about you. Be strong."
Will this EEG determine once and for all if I have having increased seizure activity?
As long as knives aren't involved, I think it is cool to learn as much as possible about my brain. I've had pictures (CT scans and MRIs), and surgeries (tissue samples), but now I get a graph!
I honestly can’t remember how many months I’ve been on chemo
I am supposed to start another round of Temodar in about a week, but I can't remember how many months I’ve been on chemo.
A recent interaction between the neurologist and me
During these spells the world looks as though I view it in a fisheye camera lens, and I feel like things are far away. I am clumsy and confused about the location of my body parts. And even if I am looking at my hands they feel foreign.