Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
STAT: “Why I decided to share all my health information with ChatGPT Health“
I use every tool at my disposal to make sense of the messiness of living with brain cancer. I don’t recommend this approach for everyone. My hope is that models like ChatGPT Health can help regular people become more curious about their health, learn to ask informed questions, and feel more prepared for their medical visits.
My First 72 Hours With OpenAI’s New Health GPT: Early Impressions
As someone who has spent nearly two decades experimenting with digital health tools—personal health records, tethered portals, wearables, symptom trackers, oncology apps, research dashboards—I was excited to see what Health GPT could actually do for me.