Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Adam Hayden: “The best way through fear is familiarity”
If you are looking for an obituary, official words, or a journalistic remembrance, I’ll point you elsewhere. What you’re going to get from me instead is something different: a first-person account from a fellow brain cancer patient-advocate who had the privilege of walking alongside Adam Hayden for nearly nine years. Also, don’t expect me to write as eloquently as Adam did. Few people could.
I’m Going Back to School: A Three-Year, Self-Funded Research Sabbatical (Kind Of)
After eight years in health research, I’m going back to school to finish my bachelor’s degree—and, who knows, work toward a PhD? For now, it’s a three-year, self-funded “research sabbatical” with big goals, tight budgets, and a lot of heart. I’m scared, excited, and ready. So why am I doing this now?