Transitioning from treatment to survivor “anxiety” is normal

Last month I posted my mantra: It might suck right now, but once it is over you will never have to do it again.

I really need to start listening to myself.

Over the past few weeks (and maybe last two months) I've been subtly freaking out about the end of cancer treatment. I know I should be celebrating but the end of Temodar makes anxious.

I think, "What will happen to me now that this is over? Will the tumor just grow back? Then what?" If you've been reading this blog I am sure you have picked up on this theme.

With this in mind I decided to call the oncology social worker at Kaiser. I told her how I was feeling and she validated my feelings and explained that anxiety about the transition from the "patient/treatment world" back into the "new normal" world is completely normal. Almost all patients experience this.

If I listened to my own advice I'd know that this transition phase is going to suck, but I will never have to do it again.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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Cancer dream