Time will tell

On Treatment
Written By Liz Salmi

Quick update:

My white blood cell count is the lowest it's ever been so Super Awesome Nurse is lowering my Temodar to 200mg/day (down from 270mg).

This bums me out. The reality is, you can't stay on chemo forever--the body just can't handle it. This stuff is wearing me out and so my medical team is taking me back a step.

I understand why they are doing this, and I agree, but I can't help but worry what impact less Temodar will have on my tumor.

Time will tell.


This blog was posted from my iPhone.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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