The Liz Army:
A blog
Patient. Patient advocate. Researcher. Student.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
Dear hospitalist: Hello from a former patient
I was only your patient for a few days, but your willingness to stay in touch during a crucial time changed my life forever.
Major life update: From patient to patient-researcher
I am still that punk rock drummer turned brain cancer patient—but now I work for an academic medical center on research and research dissemination.
Breaking down the barriers to clinical trials
We have a problem with clinical trials for people with brain tumors: Not enough people are enrolling in clinical trials, and many trial sites fail to meet enrollment needs required to conduct trials.
Spoiler alert, I'm still alive: 10 years later
I have had a brain tumor for one quarter of my life. I am the same person I was before but I am completely changed.
Precision medicine and brain cancer
The big question is, which trial is the right one? Will I be that unicorn patient who might live a life that is statistically longer than the current patient population? And with the cognitive decline that comes with brain cancer, would this be a kind of life I’d want to live?
Is there such thing as too much information when it comes to our medical history?
Is it possible I provided too much information for my medical team? Yes, but I believe it better to share everything and leave it to the professionals to weed out extraneous details.
Sorry, I forgot to tell you my dad died 14 months ago
I did not blog about my dad when he died. I wrote a song.
How I chose my new neuro-oncologist
The doctor’s job is to make sure I receive good care, not be my best friend.