The Liz Army:
A blog
Patient. Patient advocate. Researcher. Student.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
How I wrote this: My first blog post for a medical journal
The desire for a culture of transparency and openness does not just come from us “sick people.” This is what future consumers of healthcare expect—a group that will continue to grow as people are living longer with chronic conditions and serious illness.
Guerrilla healthcare redesign: Support group materials edition
How might you use your skills to redesign a patient experience?
Empowering patients with a common language for palliative care
Giving people language for self-advocacy: While patients shouldn't be overwhelmed with clinical language, helping us understand what things like palliative care are and are not improves our ability to advocate for ourselves.
Liz Salmi at Stanford Medicine X
…after delivering this talk, I heard from many people who identified with my experience. These are people who don't normally connect with my brain cancer background. All I can say is, not everyone has a perfect home life. You never know what is really going on unless you express it.
Would you take a short-term opportunity in an attempt to change the world?
What would you do, if you were offered a once-in-a-lifetime opportunity that, if accepted, would force you to leave the stability and comfort of an ‘everyday job’ BUT – might also give you the opportunity to change the world?
Rock star patient seeks primary care physician to form all-star super group
Highly engaged and empowered patient seeks new Sacramento-area primary care physician within the Sutter Health or UC Davis network.
Pushed out of the nest: Leaving Kaiser for a PPO
Changing health insurance can be scary, but especially for people with pre-existing conditions, and those who are medically complex and “expensive.”
The TED Talk that shaped my perspective on living with brain cancer
Instead of feeling like I was robbed of my health during the prime of my life, I instead choose to respond with wonder and curiosity. I recognized I was now on a journey many others would never experience.
The most misunderstood member of your health care team: the hospital chaplain
Chaplains can act a bit like social workers and therapists, but help patients explore the spiritual and/or existential hardships of a life-threatening illness.