Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Would you take a short-term opportunity in an attempt to change the world?
What would you do, if you were offered a once-in-a-lifetime opportunity that, if accepted, would force you to leave the stability and comfort of an ‘everyday job’ BUT – might also give you the opportunity to change the world?
Rock star patient seeks primary care physician to form all-star super group
Highly engaged and empowered patient seeks new Sacramento-area primary care physician within the Sutter Health or UC Davis network.
Pushed out of the nest: Leaving Kaiser for a PPO
Changing health insurance can be scary, but especially for people with pre-existing conditions, and those who are medically complex and “expensive.”
The TED Talk that shaped my perspective on living with brain cancer
Instead of feeling like I was robbed of my health during the prime of my life, I instead choose to respond with wonder and curiosity. I recognized I was now on a journey many others would never experience.
The most misunderstood member of your health care team: the hospital chaplain
Chaplains can act a bit like social workers and therapists, but help patients explore the spiritual and/or existential hardships of a life-threatening illness.
UPDATED: I attended TEDMED
Liz Salmi goes to TEDMED on a scholarship. It has been said that the most underutilized resource in health care is the patient. Let’s break this barrier!
Transcript of my talk at Stanford Medicine X
This person who gave me almost nothing in life has given me so much more with his death. And for this, I am thankful. So there is no reason to be sorry for my loss.
Who's got my back? Watching the MedX livestream
The essence of Medicine X is that everyone is included in the conference design.
Watch The Open Patient documentary
I am not a doctor. I am not a researcher. I am not going to come up with the cure for cancer on my own. But as a citizen scientist I can play an important role by sharing my experience with you, the reader of this blog.