
Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Dreaming about my friend’s brain surgery
My friend Erin is having her second brain surgery on Wednesday and last night I had this dream.
Not dying from cancer: the ultimate imposter syndrome
My friends celebrate the end of my treatment like I'm some sort of badass. I feel like a fraud because I didn't really do anything. I was a participant in the process.
My old twitching grounds: revisiting where I had a seizure
It is certainly nice now enjoying my small iced latte without the fear of scaring the shit out of baristas.
What a craniotomy scar looks like after a few years
It's nice to see that my scar is still doing well.
Chemo for the last time: I guess I have some survivorship to get used to?
The post chemo transition was kind of difficult for me, as I went from "doing something" to "waiting for the anvil to drop.”
Quoted in The Health Care Blog
Woah! Check me out... I was quoted in a story in TheHealthCareBlog.com. My part is near the end of the article... but you should read the whole thing.
What are your post-brain surgery deficits?
My right-side balance and knowledge of where my body is space is so out of whack that I can't put my leg behind my body and just KNOW WHERE IT IS.
This is almost a haiku
Something I'm afraid of: death. Something I'm not afraid of: death. Funny how that works.
Certificate of participation: cancer edition
But a medal and a survivor lap around a track? It makes me feel like entertainment.