Patient, researcher, student blog.
Living with a slow-growing brain cancer.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There will be seizures
So now it's just down to me and 3,500mg of Keppra to fight the good fight.
This is your skin on drugs
Between the neurologist and the dermatologist they realized my skin was photosensitive and that I need to wear burly sunscreen—SPF 55+ that shields from the UVA and UVB spectrum.