The Liz Army:
A blog

Patient. Patient advocate. Researcher. Student.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

Surviving, Most Popular Liz Salmi Surviving, Most Popular Liz Salmi

I wish Brittany Maynard had met other 29-year-olds with brain cancer

I have known people who have died from brain cancer, and I know people who are still living with this disease. I wanted to tell Brittany to wait it out--you don't know how fast these things will bring you down. I wish Brittany gave herself time to meet other people like herself and to find out what life can be like for a 29-year-old with brain cancer. But who am I to tell a stranger what to do?

Read More
Surviving, Advocacy Liz Salmi Surviving, Advocacy Liz Salmi

Lobbying with my emotions: brain tumor advocacy is conjuring up all kinds of dirt

I have no idea if my father is 'proud' of me, but in my mind he has no right to be proud. Because nothing of who I am reflects on him, his skills as a parent or of who he is as a person. Pride is feeling good about something you did. He never did anything, and he certainly never reached out during my entire cancer process. I never got flowers. I never got a card. He didn't come to my wedding.

Read More
Surviving Liz Salmi Surviving Liz Salmi

Creating a positive cancer environment: Stupid Cancer rocks the house

Probably the most amazing moment of all was on the first night I was there. There was a kickoff event in a nightclub for all the young adult cancer survivors and halfway through a beautiful young woman walked up to me and said my name. It took me about five seconds to realize I was looking at Emily, a young brain cancer survivor I met 10 months ago via my blog.

Read More