Patient, researcher, student blog.
Living with a slow-growing brain cancer.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
How I Wrote This: “Deciding on My Dimples” for the New England Journal of Medicine
A Perspective I wrote about shared decision making during awake craniotomy (brain surgery) was published a few weeks ago in the New England Journal of Medicine (NEJM). I am over the moon excited. From concept to publication, it took eight months for this Perspective to be published in the journal.
I am the population now: The tale of a brain cancer “n of 1”
There exists no population-level evidence that taking the drug for that length of time is beneficial to the overall survival of people living with my disease.