The Liz Army:
A blog
Patient. Patient advocate. Researcher. Student.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
A note about my oldest posts: I began blogging about brain cancer in 2008, at age 29. I had no background or knowledge about healthcare when I started. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
Breaking down the barriers to clinical trials
We have a problem with clinical trials for people with brain tumors: Not enough people are enrolling in clinical trials, and many trial sites fail to meet enrollment needs required to conduct trials.
#BTSM community survey
Please consider participating in the #BTSM community survey. The survey will be open between now and March 6, 2016.
I wish Brittany Maynard had met other 29-year-olds with brain cancer
I have known people who have died from brain cancer, and I know people who are still living with this disease. I wanted to tell Brittany to wait it out--you don't know how fast these things will bring you down. I wish Brittany gave herself time to meet other people like herself and to find out what life can be like for a 29-year-old with brain cancer. But who am I to tell a stranger what to do?
How to participate in the #BTSM tweet chat
#BTSM is a patient-run, Twitter community and is not owned by any organization, nonprofit or otherwise. We are for patients and care partners, by patients and care partners. Use the #BTSM hashtag anytime, and join us for a live Twitter chat on the first Sunday of each month.
The birth of the brain tumor hashtag on Twitter (and how it was inspired by the breast cancer community) #btsm
The birth of the brain tumor social media hashtag on Twitter, in all its glory.