Other people's cancer

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I went to the UC Davis AYA Cancer Advisory Board meeting yesterday and met a young woman with some kind of bone cancer (a sarcoma, I can't remember which type). She was diagnosed when she was little, then had a recurrence in high school.

She lost an arm bone when she was little. It was replaced with a titanium "bone". In high school she lost a leg in order to save her life. She still has only one leg. She gets around on crutches.

Sometimes I am so pissed at the world of brain cancer that I look at other cancers like they are inferior and not as crazy or as bad.

But that is a bullshit mentality. I look at this girl and all the fucked-up-ness she's endured and realize that all cancers are evil.

I am ashamed of myself for thinking of us brain cancer people as the worst of all cancers. It's not true. We all have baggage and suffer horrible consequences.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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National Brain Tumor Society refers patient support to Imerman Angels